Recent Entries

  • Another five nights in hospital

    Well post venerabin and denosomab I was in agony with gut craps. It was all working but the pain was hell. I got my first taste of morphine yep stops the pain but it's one scary drug.lots do scans and X-rays but no definitive answers. Off to oncology tomorrow but the young registrar already told me ...
    5 comments
  • no chemo today

    went in to get my chemo today but with all the side effects it was no go. Onc took one look at me and asked a serious of questions then booked an urgent head CT.Scary.................. the good news was yes I have a brain and no there are no mets in it. Hooray happy dance Damn you Viralbin and your...
    3 comments
  • helpful friend

      How many of you have well meaning friends, the kind that ring you up to tell you about the miracle cure? Tonight it was a very adamant lecture on the use of oxygen peroxide therapy, now I have never heard of it but I think its something people use to bleach their hair. Slowly and patiently I...
    3 comments
  • so why do I bother to blog here

    This is not just about me, some of you may think it is but it's not. It's about the way we all perceve each other, the way we judge. For the past eight months I cheered others up smiled and hid behind a shell of it will be ok. Now I am saying it like it is. Have I been happy with my medical treatm...
    1 comment
  • FFS

    If you don't like what I have to say don't read my blogs because they will be honest and a bit hard core. have been working on some of the stuff that makes me truely unhappy over the past couple of weeks. Stuff like when my husband walks into the lounge with something he has made and I compliment i...
    6 comments
  • where am I at?

    No chemo again last week and a bit of a nervous/emotional breakdown. I have made an appointment to see the physc next Monday. Yes I have been having suicidal thoughts but I don't believe I will act on it. I am struggling with the new version of me and relating that to the me who used to be. I go ba...
    10 comments
  • no chemo today

    could someone please wave the magic wand and make Thursday happen all over again but this time without the negative test results and without the side effects that stop me having my chemo. I sort of feel like today robbed me and sent me flying backwards. Ok so there is no magic wand and there wa...
    2 comments
  • mets in my ankle what a pain

    My ankle is hurting constantly at the moment what do you think has it gone active again and if so what should I do. I have medical oncology this Thursday should I ask to be refered back to radiation oncology?
    1 comment
  • Burgurled

    This afternoon we came home to a ransacked house. They had smashed through the bathroom window and pulled drawers out everywhere. Jewelry stolen, thnk goodness they did not find the hard core script painkillers apparently they could have made some good money on them. This is the second time this ye...
    2 comments
  • post op visit

    To day was my post op visit, I am eight days after a double mastectomy with lymph removal on the right hand side. I thought looking at myself in the mirror with dressings on was a challenge I really wasn't prepared to see the new bruised scared me. I have joked my way through the last week saying I...
    8 comments